New Genomic Network to Improve Care of Critically Ill Infants
Vermont Oxford Network and Rady Children’s Institute for Genomic Medicine partner to expand and advance knowledge of precision medicine for the NICU/PICU
Vermont Oxford Network (VON) and Rady Children’s Institute for Genomic Medicine (RCIGM) are collaborating to create a learning network for neonatal and pediatric intensive care teams. The goal is to amplify understanding of how rapid genomic sequencing can help guide complex care for critically ill infants with genetic diseases.
Led by expert faculty from the two organizations, the Vermont Oxford Rady Children’s Genomic Network will harness the power of the worldwide neonatology community to improve care by advancing knowledge and the practice of rapid genomic medicine.
“Rapid genomic sequencing is changing the way pediatric medicine is practiced,” said Stephen Kingsmore, MD, DSc, President and CEO of RCIGM. “We are excited about connecting the expertise and resources of our two organizations to improve quality of care for critically ill infants.”
The Genomic Network will offer a variety of educational opportunities including quarterly webinars, annual conferences or workshops and online learning resources. The activities will allow multidisciplinary teams from hospitals around the world to explore best practices and deepen genomic literacy.
“We are inspired by the enthusiastic interest in learning more about genomic medicine that we have seen from VON members,” said Jeffrey Horbar, MD, Chief Executive and Scientific Officer of VON. “Our partnership with Rady Children’s Institute for Genomic Medicine, a leader in the field, will harness the momentum of the neonatal community of practice to help make sure we’re using genomic resources responsibly, efficiently, and ethically.”
Because diagnosis and treatment of genetic conditions requires a committed multi-disciplinary team, the Genomic Network participants will include medical geneticists, genetic counselors, medical ethicists, lab directors, neonatologists, pediatricians, neonatology fellows, NICU nurses and neonatal nurse practitioners, physician medical directors, and nursing directors. Institution-level membership is open to neonatal and pediatric intensive care teams from hospitals interested in learning more about clinical application of genomic medicine as well as those with well-established clinical genomics and research programs.
Improving care for vulnerable infants is the shared mission of the two organizations. Vermont Oxford Network is a world leader in data-driven quality improvement in newborn care. Rady Children’s Institute for Genomic Medicine is pioneering the use of whole genome sequencing to rapidly inform medical management of newborns in intensive care.
The network launch follows the successful Genomics Summit the two organizations held at the VON 2018 Annual Quality Congress in September.
Membership in the Genomic Network is complimentary as a benefit for VON members as well as open to institutions that are not currently VON members. More than 50 hospitals and medical centers have already signed up. Registration is open at www.vtoxford.org/genomicnetwork.
About Vermont Oxford Network
Vermont Oxford Network (VON) is a worldwide community of health care professionals dedicated to improving the quality, safety, and value of care for newborn infants and their families through a coordinated program of data-driven quality improvement, education, and research. Members use confidential information from the world’s largest and most comprehensive databases of infant data to benchmark their practices and outcomes and identify areas for improvement. Teams from around the world address critical and complex challenges of newborn care with evidence-based quality improvement methods guided by VON expert faculty and resources. www.vtoxford.org.
About Rady Children’s Institute for Genomic Medicine
The Institute is leading the way in advancing precision healthcare for infants and children through genomic and systems medicine research. Discoveries at the Institute are enabling rapid diagnosis and targeted treatment of critically ill newborns and pediatric patients at Rady Children’s Hospital-San Diego and partnering hospitals. The vision is to expand delivery of this integrated translational research process to enable the practice of precision pediatric medicine at children’s hospitals across California, the nation and the world. RCIGM is a subsidiary of Rady Children’s Hospital and Health Center. Learn more at www.RadyGenomics.org. Follow us on Twitter and LinkedIn.