Extremely Low Birth Weight Follow-Up

ELBW infants are at increased risk of serious health and developmental problems. Timely evaluation can give health care providers and parents reliable information for decision making regarding care of the ELBW infant.

The Vermont Oxford Network Extremely Low Birth Weight (ELBW) Infant Follow-Up Project was established to assess the health and neurodeveopmental status at 18 to 24 months corrected age of infants born weighing between 401-1000 grams, or between 22 and 27 weeks and 6 days gestational age, who survived until hospital discharge.


  • To establish a network of centers capable of tracking infants for long term follow-up
  • To identify measures of health and developmental status that can be collected reliably, accurately, and in a standardized manner
  • To obtain health and developmental outcomes of surviving ELBW infants
  • To assess the impact of delivery room interventions and other complications of prematurity on the health and developmental status of ELBW infants


Data collection started for infants born in 1998, and continues with infants born in 2016.


Mercier CE, Dunn MS, Ferrelli KR, Howard DB, Soll RF, and the Vermont Oxford Network ELBW Follow-Up Study Group. Neurodevelopmental outcome of extremely low birth weight infants from the Vermont Oxford Network: 1988-2003. Neonatology. 2010;97(4):329-38. Epub 2009 Nov 24. PubMed: 19940516.

Mercier C, Conner J, Howard D, Cohen H, Dunn M, Magoon M, Wilson-Costello D, Soll R, and the Vermont Oxford Network Follow-Up Study Group. More than 1001 infants weighing less than 1001 grams (g) at birth: health and developmental outcome. Pediatric Research. 2004;55; 4 482A.

Mercier C, Conner J, Howard D, Cohen H, Dunn M, Magooon M, Soll R and the ELBW Follow-Up Centers Expanded Follow-Up of the Health and Developmental Outcome of Infants with Birthweight (BW) Less Than 1001 Grams. Pediatric Research. 2003:53;4 494A.

Mercier C, and the ELBW Follow-Up Group of the Vermont Oxford Network Survival and Outcomes of Infants with Birth Weight (BW) Less than 1001 Grams (g). Pediatric Research 2002:51;4 292A.