Vermont Oxford Rady Children's Genomic Network

A learning network to shape the future of genomic medicine in newborn care.

Acutely ill infant in NICU

Core VON Members can join the Genomic Network

Rady Children’s Institute for Genomic Medicine is leading the way in advancing precision healthcare for infants through genomic medicine research.

The collaboration between VON and Rady Children’s Institute for Genomic Medicine seeks to advance the quality of newborn care by creating a learning network to expand knowledge and competency in genomic medicine for multidisciplinary NICU teams.

Participation in the Genomic Network is a complimentary benefit of VON Core membership. If you are not a VON member, please contact us about opportunities to participate in the Genomic Network.

mother and infant

Designed for Multidisciplinary NICU teams

Diagnosis and treatment of genetic conditions requires a committed multi-disciplinary team

Institution-level membership is open to neonatal and pediatric intensive care teams from hospitals interested in learning more about clinical application of genomic medicine as well as those with well-established clinical genomic and research programs.

Participating teams should include diverse professionals such as medical geneticists, genetic counselors, medical ethicists, lab directors, neonatologists, pediatricians, fellows, NICU nurses and neonatal nurse practitioners, physician medical directors, nursing directors.

collaborating team

Harness the Power of the Genomic Network

Expand your multidisciplinary NICU team’s knowledge of precision medicine

Expert faculty leading the Genomic Network will facilitate learning, sharing, and collaboration between colleagues currently practicing genomic medicine and those new to it.

Learning activities include quarterly webinars, annual conferences or workshops and online learning resources. The activities will allow healthcare clinicians to explore best practices and deepen genomic literacy among teams with limited exposure to the application of genomic medicine.

Genomic Network Biorepository

In partnership with Rady Children’s Institute for Genomic Medicine and Genomic Network members, we are seeking to create a new research biorepository. The goal of this project is to provide a valuable resource for Genomic Network members to develop and test the implementation and utilization of rapid precision medicine as the first line choice of diagnostic testing.

Through this biorepository, we aim to:

  • Provide access to rapid whole genome sequencing (rWGS) to diagnose and guide clinical management of infants in Level III and IV NICUs
  • Further the understanding of specific neonatal genetic diseases, treatment responses, and outcomes
  • Identify new genomic abnormalities and their phenotypic presentations.

Members participating in the Vermont Oxford Rady Children’s Genomic Network can sign up for the biorepository by contacting Michele Feddock, research program manager at RCIGM, at mfeddock@rchsd.orgView in depth information about the project with this video.

Schedule of Activities

February 19, 2020
3:00 PM Eastern
Learning Network Case #1: The Role of Genomic Sequencing in Neonatal Metabolic Disorders

August 26, 2020
3:00 PM Eastern
Learning Network Case #2: The Role of Genomic Sequencing in Neonatal Neuromuscular Disorders

September 10, 2020
3:00 PM Eastern
Biorepository Informational Webinar – See the Recording

September 24-25, 2020
Virtual Frontiers in Pediatric Genomic Medicine Conference*
Register with the code VONNetwork
(*Vermont Oxford Network did not participate in the design or planning of the Frontiers in Pediatric Genomic Medicine Conference and does not receive financial support from the conference or from any of the meeting’s commercial sponsors.)

October 7, 2020
3:00 PM Eastern
Learning Network Case #3: The Role of Genomic Sequencing in Neonatal Seizures

November 18, 2020
3:00 PM Eastern
Learning Network Case #4: The Role of Genomic Sequencing in Neonatal Hyperbilirubinemia

Genomic Network Participation is a benefit of Core Membership