Vermont Oxford Rady Children's Genomic Network
A learning network to shape the future of genomic medicine in newborn care.
For Teams with All Levels of Experience in Genomic Programs
Rady Children’s Institute for Genomic Medicine is leading the way in advancing precision healthcare for infants through genomic medicine research. The collaboration between VON and Rady Children’s Institute for Genomic Medicine seeks to advance the quality of newborn care through a learning network for multidisciplinary NICU teams.
Expert faculty leading the Genomic Network facilitate learning, sharing, and collaboration between colleagues currently practicing genomic medicine and those new to it.
Participating teams include diverse professionals such as medical geneticists, genetic counselors, medical ethicists, lab directors, neonatologists, pediatricians, fellows, NICU nurses and neonatal nurse practitioners, physician medical directors, nursing directors.
Genomic Network Biorepository
To supplement the activities of the learning network, VON and RCIGM have launched a biorepository to help teams implement Rapid Precision Medicine to diagnose and guide care for critically ill infants.
Through this biorepository, we aim to:
- Provide access to rapid Whole Genome Sequencing at no cost to participating centers to diagnose and guide clinical management of infants in Level III and IV NICUs;
- Further the understanding of specific neonatal genetic diseases, treatment responses, and outcomes;
- Identify new genomic abnormalities and their phenotypic presentations.
Schedule of Genomic Network Activities
Learning activities include webinars, annual conferences or workshops and online learning resources. The activities will allow healthcare clinicians to explore best practices and deepen genomic literacy.
February 19, 2020
3:00 PM Eastern
Learning Network Case #1: The Role of Genomic Sequencing in Neonatal Metabolic Disorders
August 26, 2020
3:00 PM Eastern
Learning Network Case #2: The Role of Genomic Sequencing in Neonatal Neuromuscular Disorders
September 10, 2020
3:00 PM Eastern
Biorepository Informational Webinar – See the Recording
September 24-25, 2020
Virtual Frontiers in Pediatric Genomic Medicine Conference*
Register with the code VONNetwork
(*Vermont Oxford Network did not participate in the design or planning of the Frontiers in Pediatric Genomic Medicine Conference and does not receive financial support from the conference or from any of the meeting’s commercial sponsors.)
October 7, 2020
3:00 PM Eastern
Learning Network Case #3: The Role of Genomic Sequencing in Neonatal Seizures
November 18, 2020
3:00 PM Eastern
Learning Network Case #4: The Role of Genomic Sequencing in Neonatal Hyperbilirubinemia
February 3, 2021
3:00 PM Eastern
Closing the Evidence-to-Implementation Gap in Rapid Whole Genome Sequencing: Multiple California Hospitals’ Experiences
Genomic Network Participation is a benefit of Core Membership
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