Extremely Low Birth Weight Follow-Up

Health and Neurodevelopmental Status at 18 to 24 Months Corrected Age


  • 18 to 24 months corrected age of infants born weighing less than 1000 grams or gestational ages less than 27 weeks and 6 days who survived until hospital discharge.

Data Items

  • Health status
  • Living situation
  • Support after discharge
  • Medical and surgical re-hospitalizations
  • Growth, vision, and hearing
  • Developmental status, cerebral palsy, gross motor milestones

Data Submission

  • Secure online data submission through the ELBW Follow-Up data entry tool on the VON website.

How to Join

Participation in ELBW Follow-Up is Available to Core Members